Comments on: My Experience With Lupron

By: Jacquelyn

Jacquelyn — Sat, 10 Jul 2010 00:06:59 +0000

I am 22 years old and found out I had endo a year and a half ago due to severe pain during my periods. In December 2009 I had surgery and they got most of it but some of it they couldn’t get because it was on my colon. They told me the lupron shot was my only option. It took me awhile to decide because all the bad stuff that has been said about it. I decided to do it during the summer so it wouldn’t distract me in school when I start back in the fall. I am about to take my second shot at the end of July which will be my last shot. So far everything has been pretty good. The second week I had extreme achy muscles. A month in I was having mild warm flashes and a little tired here and there. Right now I am having bad hot flashes, bad acne, and have gained 7 pounds which feels like water weight. Honestly I could have easily handled this during school so far and think people should definitely give the shot a try.

By: Kate

Kate — Tue, 29 Jun 2010 05:59:17 +0000

I am 23 years old and was diagnosed with endo about 6 months ago. It all started one night while I was at work. I had just started my period that afternoon, and as the day progressed, the pain worsened. My periods prior to that day were-what I considered- fairly normal. They last about 4-5 days with moderate bleeding and mild cramps. No big deal. So when I started feeling this pain, I just knew something wasn’t right. When I arrived to work the pain was excrutiating to the point that it was making me nautious. My coworkers told me that I was ghostly pale and made me lay down. Luckily I work at a hospital, so the other nurses checked my vitals and wheeled me to the ER. I had a vaginal ultrasound done which revealed what the doctor thought was a cyst on my right ovary. It was 6cm in diameter. Long story short- I ended up having a diagnostic laparotomy about 3 months later which revealed significant endometriosis and adhesions. The mass seen on my ovary was an endometrioma. Since I’m young and have no children, my Dr. suggested lupron therapy. I just had my third injection today. I, like many of you, was scared to death by all of the things that I had read on the internet. But, with the help of my father who is a physician, I decided to try it, knowing that I could stop at any point if the side effects were too unbearable. So far, it really hasn’t been that bad. I’ve definitely had some hot flashes, but nothing compared to what I had feared. Of course I am no longer mestruating as well (which is kinda nice, ha). I have not noticed any mood swings or any other symtoms thus far. I still have 3 months left of therapy, so who knows what the future holds, but I encourage those of you who are trying to decide whether or not to take this drug to stop reading all of those horror stories and listen to your doctor. Talk it over with them. Voice your concerns. They are the educated ones and, in most cases, want what is best for us, the patient. I hope this information helps.

By: Jen

Jen — Thu, 13 May 2010 02:21:24 +0000

So far I’ve had 3 laparoscopys for endo. My last was in may of 2009 to partially remove a cyst from my left ovary. They didn’t remove the whole thing because my doc was trying to save the ovary since my hubs and I have had a lot of difficulty trying to get pregnant. Recently I had severe pain in my back, abdomen, and groin as well as a lot of pressure and pain to urinate and blood in the urine. I thought that I had a UTI or kidney stone but that’s not the case. Doc thinks my endo is back and has developed on my bladder. He doesn’t want to do anymore surgeries so he is suggesting I start lupron. Right now I am taking percocet to help with the pain. Feeling like I don’t have much of a choice right now as I can hardly function with the pain I’m in. Just going to the bathroom is excruciating. I’m having an MRI tomorrow to rule out anything else that could be there.
Has anyone else dealt with Endo on the bladder before???

By: Deeny

Deeny — Mon, 19 Apr 2010 17:35:40 +0000

My case is very different from most that I’ve read here.

I’m 41 years old. A few years ago I experienced mild to severe chest pains, but after every test under the sun, there was no diagnosis. This is typical as endo does not show up on a MRI or CT. I chalked up the pain to stress/anxiety and just lived with it. As the chest pains occured during my menstrual cycle, there was a suspicion that it might be endo. I didn’t pursue finding out what the problem was because my life was not altered by the monthly chest pains.

Last fall, through a routine physical, I was diagnosed with high blood pressure and as they were monitoring my blood tests to adjust the medication appropriately, they found that my creatinine level was elevated. Tests revealed a blockage in addition to enlargening of the kidney. I had the blockage removed and the polyps turned out to be endometrial tissue. My doctors said that this was a very rare occurrence and went in laparascopically to discover that I had a very severe case of endo – implants were everywhere. I now knew that what I thought were just anxiety-related chest pains, are most likely endometrial implants.

I have just started Lupron and so far I haven’t had any bad side effects. The occasional hot flash comes at night time and the moodiness is definitely evident but not unmanageable. Prior to going on Lupron treatment I was terrified because I read about so many horror stories. I now know that every person will react to the treatment differently and worrying about what might happen is a waste of energy.

I hope that women who do NOT have the typical debilitating pain, heavy bleeding etc. most associated with endo, pay attention to any type of pain that they experience during their menstrual cycle. Endo is a funny thing and can present itself in different ways. Who would have thought that you could have endo in your chest? And for somebody who has a very severe case of it, I live a very active life with little pain. I feel blessed that the doctors discovered that I had the disease because had I gone on for much longer without any diagnosis, I might have lost a kidney.

By: Kim

Kim — Sun, 21 Mar 2010 04:33:38 +0000

I was diagnosed with PCOS and endometriosis at 16 years old. I have had 9 laperoscopies done in the last 13 years. I have had my left fallopian tube removed because of cysts and the endo. I am currently on my second round of Lupron. I was placed on bc at age 12 because of heavy bleeding and very painful periods. It just continued to get worse. I decided at 19 years old to go through my first round of Lupon injections. I didn’t have any side effects and it seem to work for about 1 year. Then my problems started to get worse then they were. My husband and I decided we were going to try and have a baby. The doctor said my chances were really low but if I had a baby it would help get rid of some of my problems. So after 7 years and 4 rounds of fertilty treatments we gave up. One year later, I became pregnant. I now have a healthy 3 year old little girl. In the last year, all of my symptoms came back. I am now on my second round of Lupron and I am having a really bad time this round. I have had most of the side affects and I am currently covered in a rash, that they believe is caused by the medication. After just two treatments, I am done. I have an appt next week with my obgyn to decided what next.