My Experience With Lupron
Posted in My Thoughts on 11/06/2007 11:41 am by ChasLupron is a medication often given after birth control can not control your Endometriosis. This is a much harder method for you to endure. With that being said, it is not as hard as everyone may make you feel. This medication acts as an artificial menopause. It completely shuts down your hormone flow in order to stop the growth of the disease.
You will hear many horror stories about this medication and how hard it is to handle but as a person who knows, you can handle it. In truth, it does cause hot flashes, mood changes, and other menopausal type symptoms. It is not the easiest thing to take but it by far, is not the hardest either.
After your cycle of Lupron you should feel an extreme level of comfort that you did not feel prior to this step. In some cases, the disease can actaully go away for the most part forever but, in my case after about six months the disease began to grow back. Had I been ready at that point to have children, the opportunity could have very well been there but I was not ready. If you have child bearing issues and want children but the Endometriosis stops you, I would advise following the direction of your physcian and if this method is what he suggests, go for it. It very well may change the rest of your life.
December 3rd, 2007 at 3:41 pm
I haven’t tried Lupron. I don’t qualify for most ofthe hormonal options because of rare migraines I suffer from. But I use Mirena and am really mixed about it right now. Seemed like it worked for a while and now is not as well!
September 24th, 2008 at 11:27 am
My doctor would like for me to start on LUpron. I have also chronic migraines at least 2’s a month. I know it was from all the birth control pills..no one believed me. They did a head scan and found i have a tumor on a gland in my brain. They said they dont need to remover it. Once i stopped my pills the headaches finally went away..Now i’m in chronic pain though. it’s been 3 month now and i just had my period and the pains just wont stop. I refuse to go on Lupron. I heard it is the worst drug you can take from my cousin. My last choose is to have a baby, but i’m not sure i’m ready.
February 11th, 2009 at 3:19 pm
My daughter just turned 18 in January of this year and has been diagnosed with Endometriosis. Her Dr had to remove a tumur from her ovary, and that is when he saw the Endo. He has suggested to do Lupron but I am very scared. She is only 18 and getting ready for College. Is there anyone that has or knows someone that has gotten Endo when they were young? If so, what did they do?
February 11th, 2009 at 3:29 pm
I would suggest she takes birth control pills for 3 packs straight and stop..but if her period stops after time..stop taking them and start over again once it stops..If anyone tells you to still take them, it completely throws your body of and makes you feel like you are going crazy. They found mine at 23, i’m pretty sure I had it earlier. Although my first surgery was at 19, but they didnt find it but there werent looking either. I have also tried many birth controls, i realized low estrogen types help the headaches go away and dont make you feel so crazy or off balance. Eventually your body feels better after taking the pills but if you have chronic heads really really bad, like i did after Seasonal, dont take it anymore..I would not suggest taking that for over a year. I hope i was of some help?? if you have any more questions feel free to write me. I am now 30, and have been through a lot of trying to control it. I’m still going through a lot because of it though. Personally i wouldnt take LUpron though..i still havent. I refuse to take fertility drugs just because i took Lupron. I already have twins in my family I dont want triples..
February 22nd, 2009 at 2:28 pm
There is new minimally invasive surgery that is very helpful in treating the visible endometriosis. Lupron and Zoladex are medications that are very helpful in suppressing endometriosis that is not surgically visible.
I have been using ABC (Argon Beam Coagulator) during laparoscopy to vaporize visible endometriosis safely. In fact, I have been treating the peritoneal cudfesac and ovarian fossa with excellent results in suppressing pain and restoring fertility. I usually follow the surgery with 6 months of Zoladex.
Jose Bolanos MD OB/GYN & Infertility.
February 22nd, 2009 at 2:34 pm
I recommend treatment of endometriosis in college aged women when it is diagnosed. The treatment is safe and effective in suppressing the progression of the disease. The treatment will enable a better quality of life and the preservation of fertility. I can not stress it enough, endometriosis is progressive and stopping this progression early is important.
April 5th, 2009 at 8:11 pm
Hi, I had endometriosis! After living in two and half years of chronic fatigue, pain, and many tests. It took the doctors two and half years to determine that I had endometiosis, by this time it had developed into endometreial cancer. The week following the diagnosis I was in surgery which confirmed that it was endometriosis/endometrial cancer. I had alot of endometriosis and immediately started the pill which was unsuccessful. Then I started Lupron for six months. I felt good at first until I began to have horrific bone pain, and memory problems to the point I experienced extreme memory loss. After a few months the pain came back even worse than it was before. My last visit to the doctors I was told there was nothing more they could do for me and I couldn’t have any more Lupron or treatments of any kind for many years because I had the first stage of osteoporosis in my spine. I am a christian and I cried out to God to give me something to heal my body and He lead me to go to an Amish grocery store in Lancaster, Pa. I met a man there who was speaking with some Amish women and they were saying that we had heard you were sick, you look so good now. He finished talking with the women and turned to me and walked over to me and introduced himself. He began to share his testimony with me, that he had stomach cancer and the doctors sent him home and there was nothing more they could for him. After that his friend brought him Young Living essential oil of oregano. He began to ingest it and to rub it on his stomach and he is cancer free. I started to cry and I said our stories are similar but different cancers. I said, God has sent me here to get these oils. He told me were to get the oil of oregano. I started to take the oil of oregano internally in gel capsules and rub it on my stomach. Within four weeks I was pain free and I hadn’t been pain free for two and half years. I have remained on the oils to maintain my health. I am pain free and it has been seven years. I thank God for answering my prayers and bringing healing to me. I pray that all the women who are suffering with this illness will be able to recieve the information that I have just given and with that possibly be healed by our Lord Jesus Christ.
May 13th, 2009 at 1:14 am
my sister has been diagnosed with this disease. could you please send me/tell me about this oil of oregano and where to find it. all info you can give me would be wonderful.
thanks
May 14th, 2009 at 3:51 pm
Vickie,
I am sorry to hear your sister has endometreosis. I will be praying to God and asking Him if it is His will, He will bring His miraculous healing to her. You can get the oils from Young Living Essential Oils. There phone number is 1-800-371-2928, you can use my member number (402047) or you can sign up as a member. If I can help you in any other way please let me know. My cell phone number is 802-377-0342 feel free to call for prayer requests, or a good listening ear.
In Christ’s Love,
Kimberly Waldman
June 16th, 2009 at 5:11 pm
Hi! I’m 15…and my doctor just diagnosed me with endometriosis. Its a pretty scary thing to have to endure at such a young age. And one of the hardest parts is not having anybody to relate to. But I recently just found out that a young woman at my church has it and she has really been there for me. I recently started birth control with Yaz. The end of this month will be my first period with the pills and I have been experiencing some really painful symptoms that I didn’t feel before. For the first couple of days I had REALLY bad headaches. Has anyone else had these problems?
June 22nd, 2009 at 9:08 pm
I have had active endometriosis, adenomyosis ( in the Uterus) AND Ovarian cyst for over 10 years. I was diagnosed when I was in college and there isn’t a treatment I haven’t tried. I worked my way through the research archives (I have a background in medical research)to fully understand the disease. Information is your best weapon. Keep a detailed log of the pills you try especially the estrogen, if it fails make them change the estrogen or go off it completely. If pills do not work for you then move on to Norethin. If that fails, then you are finally at the Lupron faze. I took Lupron for 2 years and it gave me my life back. I know it is not the solution for everyone, but I found that having laproscopic surgery followed by 6 months of lupron was the most effective combination. I can’t stress enough that you need to take this seriously; keep a journal of your meds, symptoms and what makes them better/worse. This is your doctor’s map to your condition so make it as detailed as possible. If you are getting really bad headaches from a pill you need to change hormones Yaz has a different progesterin so try a more traditional pill. Ovcon worked the best of the birth control pills for, but each person’s body chemistry is different. Feel free to ask me any quesstions, it helps to share my knowledge.
June 24th, 2009 at 11:37 am
Hi, my name is Zena and I am currently doing a reseach paper on Endometriosis for my summer biology class. I’ve gathered alot of information but I thought it would be a good idea to get information from women as well as men who would like to share thier stories. If you would like to take part please feel free to email me at papillion4life@yahoo.com My paper is due in July so your in put is greatly apperciated.
June 25th, 2009 at 4:23 pm
chauncyB,
Please do some reseach into Lupron I have experienced very bad side effects as well as many other people. Before you go to your doctor and receive this treatment look into negative side effects for Lupron on the internet. May God give you wisdom along with your parents to help you make the right decision for you.
In Christ’s Love,
Kimberly Waldman
June 25th, 2009 at 10:34 pm
Kimberly,
I have done extensive research on all scientifically proven/studied medical treatments related to endometriosis. I would qualify Lupron as a “chemotherapy level” drug. By this I mean, when all else fails, the side efffects ( hot flashes, night sweat, ditzyness) I can handle. A good diet rich in calcium and free of estrogen plus vitamin d and a liquid calcium supplement can offset the potential bone loss. I believe that it is important that young women who are diagnosed seek medical attention first and only persue alternative therapies under the guidence of a trained professional. I am glad that you were able to find relief, but I think that scientific evidence is essential for quality treatment. Lupron has been scientifically proven to stop lesion growth, but like all medicines should be used only under the close supervision of a GYN prefereably an endo specialist.
July 24th, 2009 at 11:16 pm
I’ve had endo for years, had 9 surgeries, took Depo-Provera, and also Lupron, which all failed. I finally ended up getting a hysterectomy with both ovaries out at 40 years old. I have to take a very small amount of esorogen to be able to have sex once or twice a month so my husband won’t divorce me. Otherwise, it’s just too painful. It still hurts just the same, just not as unbable as before. Every time I even think about it I just grit my teeth. Does anyone else still have pain after surgury?? It just goes on and on.
July 26th, 2009 at 12:51 pm
patti mccomb,
There is hope for you! My name is Kimberly Waldman. I have posted my testimony on this site on April 5th 2009, please read it and if you have any questions I would be happy to speak with you by e-mail (beth-el_7@msn.com) or phone (802-388-0342). Please know that the essentials oils can give you relief from your pain, even after surgery, as they have done for me and many other people as well!
In Christ’s love,
Kimberly Waldman
July 31st, 2009 at 12:26 am
In May of 2008 I had a complete hystro leaving both ovaries. I was covered in endo. Prior to the surgery I was in severe pain espically in my lower back and during my monthly cycle. I also had this uncontrolable itching like I had a yeast infection but never did. After many test (pain sonos) and a new doctor I was pain free but not for long…In OCtober I started feeling tired again with extreme pain in my back (again) and pain during sex. I went back to the doctor..I had another painful sono which showed a softball size cyst on one ovary and neither of the ovaries would move which indicated the endo was back…During my second surgery in Nov the cyst was full of endo as well as other places on both ovaries…My doc (who I love) cleaned me up, again…We started me on birth control however, I have never been able to take bc pills…they cause migranes, they make me vomit and they make my gain weight…so as before I stopped..STUPID, I know…Now its back again…My lower back pain, my fatigue, my weight gain, getting sick when I eat, severe cramps like I am going to start my period…My doc wants to try Lupron…Im 39 and I have a very stressful and physically demanding job. I don’t know what to do….I just want the pain to stop…and right now not even the darvocet is working…any suggestions?? any comments?
August 6th, 2009 at 11:12 am
I began having serious cramps when I was 16-the cramps would be so bad that I would double over from the pain. Although I was able to go to school I didn’t make it to work very much or join any after school activities. My general physician at the time put me on birth control pills which only seemed to regulate when I would be feeling the pain which meant that I could brace myself for a week of torture. The pain lasted up until college at which time it was the same situation heavy bleeding and at least a week of not being able to move. When I started law school however, I saw a bump that began to form on my belly button-I shrugged it off as a black head but it turned out to be an endometrioma that had formed outside of my belly button-I had it removed and shortly there after noticed that my stomach began to swell -I immediately went to the doctor who told me that it would go away and it was just gas. The swelling never went away and I looked to be about 9 months pregnant–I changed doctors and was told that the reason my stomach was swelling was because it was full of fluid I was referred to an oncologist who tested me for several things-I was diagnosed with being malnurished, severely anemic. I had the fluid drained from my stomach which came to about 6 litters of a blood like substance–I found out that the fluid was from endo. Shortly after having the fluid drained I was given a number of test to determine how extensive the endo was–after a CT scan, the photos came back to hard to read- so my doctor said that she would need to open me up to get better look and any endo that she found she would get rid of- (I have photos of all of my procedures I can mail them if you would like) Nevertheless before she opened me up i had to undergo 3 iron transfusion because I was so malnurished surgery would have been impossible with out it. During surgery the doctors removed another 2 litters of fluid from me and found endo had completely covered my intestines, i had a fibroid removed, endo covered my liver,and my diaphragm. I have never been told that I have adhesions exactly but I have been told on numerous occasions that I have extensive scar tissue. After surgery I was placed on Lupron Depot for six months total and the endo seemed to have gone away-after my six months of Lupron I was then given the Nuva ring. More recently i went to the ongologist for a simple check up and discovered that their was fluid on my lungs- I had almost 2 liters of fluid which is believed to be endo removed from my right lung, followed by the removal of 2 cyst also believed to be endo from my right ovary I am now awaiting another treatment of Lupron. I am currently undergoing Lupron treatments and to anyone that has questions about it I prefer this over painful periods Lupron isn’t that bad if you have endured painful painful periods. (Please read my blog) Anyway, I have done extensive research on endo and have learned that there are very few cases of women having what is called pleural effusion endo or lung endo. The thing that is important to know about endo is that it can spread anywhere. Endo is simply tissue and wherever tissue can attach itself is where you will bleed-that includes your brain (rarely) and inner ear( also very very rare). Which begs the question how do you stop endo–well simple you have to stop menses which for now means you have a hysterectomy or you undergo some form of hormone control such as Lupron. TALK TO YOUR PHYSICIAN but read so that you understand the options available to you. If you have any questions please feel free to hit me up on my blog. I am 27 years old with no children and understand how hard it is to feel relief and to get some sort of comfort from endo.
August 6th, 2009 at 1:30 pm
Hello my wife has been diagnosed with Endometriosis and we have discussed the possibility of starting Lupron with her doctor. Her pain is excruciating and at 32 she is terrified of starting anything that sounds like menopause. I am just trying to educate myself and others about this little known condition and appreciate any feedback you can provide.
Thanks
August 6th, 2009 at 3:13 pm
I would highly suggest you consider having a family now. My cousin had such a bad case she wasnt even married they told her its now or never..they had her on so many different types of drugs like lupron..she hated it..she was only 26 and she had no chose but to have her baby now..she finally got pregnant with twins and then got married.after 6 years later she had to have a hysto. It may not be perfect circumstance but sometimes if you want what you want you have to sacrifice..I on the other had also have endometrosis was on and off many birth controls since i was 23 and they started to make me feel horrible..I was able to delay when i wanted to have a baby because i never wanted to have a doctor to tell me when i was ready..but i always had that in the back of my mind..After one miscarriage and I’m now 31, we are finally having our first baby..almost 4 months pregnant and i’m glad it was under my turns..I have never felt better in my life! Everything has just gone away!
October 23rd, 2009 at 2:16 am
I have had severe abdominal pain for about 2 years now and have been put on the ortho evera patch continuosly to not have a cycle. My ob recently recommended Lupron thinking I may have endo, but I am hesitant to start it without knowing if I actually have it. Is there something I should request to do first, possibly a laperscopy. Im only 22 so entering menopause right now is a scary thought. I do not have a very high pain tolerence, do you think lupron is a good choice?
October 23rd, 2009 at 10:47 am
I would personally not. I was taking oral birth control for many years once i would have symptoms my doctor would change it. If i felt unbalanced or my period would stop she would let me have my period once and the start the 3 packs again. That seemed to work for a very long time. I just dont see the point in taking lupron when we are known for being low in fertility as it is. Why take the chance to have more problems down the line. With all the years of taking birth control from the time i was 23, (9 years), I clearly didnt have a problem with infertility. I proved everyone wrong on our first try. i did have a miscarriage the first time, but the second time i also got pregnant the first time. I’m now 6 months pregnant with no problems. Everyone thinks my body is healing itself. My point is i would try everything before i do the rod thing in your arm and lupron.
November 11th, 2009 at 1:55 pm
Hi, my name is Denise and I have been suffering from Endo since the very first day I got my period. I remember having very very severe back pain and not knowing what it was until I went to the bathroom and realized I got my period for the first time (age 14). From then on out, every single month I had horrible back pain that would occasionaly (thru the week of having it) travel into my lower stomach. For about four years I dealt with it and would have to miss school if I was in such pain. At the age of 18 I went in for a laproscopy where they found the Endo and found that it was so severe they couldnt remove any of it. It was all over my other organs and since it was so thick they couldnt risk removing it. After that I tried Depo & Lupron (for about a year all together) which made me retain so much water I couldnt even wear my regular clothes to work. The hot flashes from the both of them were unbearable so I gave up on those shots. The next step was three month birth contral packs…I would never take the sugar pills though, I would just start my next pack–this would then mean that I would never end up getting my period which would result in NO PAIN!
I did that for about 7 years, Im now 25 and started spotting even when never taking a break between months (I think my body finally became immune to the pills) Even spotting just a little bit I would feel the endo pain immediatley!! Right now, my GYN said why dont I just maybe make it so that I get my period to see if in a few months the pain will subside. It has been 6 months and the pain is still there every time I get my period (and spotting). It is so depressing and frustrating all at the same time. The pain is rediculous and I dont know how to solve this problem. Has anyone else tried the birth control and never taking a break in between? Is it healthy to not get my period for years at a time? I just dont know what to do anymore? Any one else in my boat? I think I want to try and get another laproscopy and see if the endo has gone away and maybe I can now have it removed 
November 13th, 2009 at 5:25 pm
Denise:
If you read my April 09′ comment it will give you my testimony. A more in-depth testimony can be gotten by e-mailing me. And yes, there is a method to relieve all of this pain and suffering – just e-mail me.
I have also found another product that can relieve your pain. It is called Hemp Protein powder (Red Mill is the brand name) and it can be purchased at any health food store.
Again, I understand your pain and your plight and am sure i can help you with natural alternatives.
I will be praying for you,
Kimberly
November 13th, 2009 at 5:34 pm
Misty:
Please read my testimony and yes there is something that you can take naturally – just e-mail me and I will be more than happy to give it to you.
In the mean time try Hemp Protein powder from Red Mills which can be gotten at any health food store,
December 16th, 2009 at 2:12 pm
I am new here, just had a laperoscopy and a D & C done and they found endometriosis along with Adenomyosis. The Dr. wants to put me on Lupron and Zoladex together, then do an ablation on the uterus, and then in March another laperoscopy to get rid of more endometriosis that will def. be growing back he said. So, what does everyone think of this? I am 39, and right now have osteopena, which got worse in one years time. He also said he’ll put me on med. for osteoperosis. Is this all going to cure the endometriosis from coming back? I do know what the ablation does, and that’ll be good, I had severe thickening going on, twice in a matter of 2 years. He also said he can get rid of the uterus If I want, but it won’t correct the endo. and it’s a more aggressive way to treat what I have. What do you guys think?? Please please help. I need to decide.
March 21st, 2010 at 12:33 am
I was diagnosed with PCOS and endometriosis at 16 years old. I have had 9 laperoscopies done in the last 13 years. I have had my left fallopian tube removed because of cysts and the endo. I am currently on my second round of Lupron. I was placed on bc at age 12 because of heavy bleeding and very painful periods. It just continued to get worse. I decided at 19 years old to go through my first round of Lupon injections. I didn’t have any side effects and it seem to work for about 1 year. Then my problems started to get worse then they were. My husband and I decided we were going to try and have a baby. The doctor said my chances were really low but if I had a baby it would help get rid of some of my problems. So after 7 years and 4 rounds of fertilty treatments we gave up. One year later, I became pregnant. I now have a healthy 3 year old little girl. In the last year, all of my symptoms came back. I am now on my second round of Lupron and I am having a really bad time this round. I have had most of the side affects and I am currently covered in a rash, that they believe is caused by the medication. After just two treatments, I am done. I have an appt next week with my obgyn to decided what next.
April 19th, 2010 at 1:35 pm
My case is very different from most that I’ve read here.
I’m 41 years old. A few years ago I experienced mild to severe chest pains, but after every test under the sun, there was no diagnosis. This is typical as endo does not show up on a MRI or CT. I chalked up the pain to stress/anxiety and just lived with it. As the chest pains occured during my menstrual cycle, there was a suspicion that it might be endo. I didn’t pursue finding out what the problem was because my life was not altered by the monthly chest pains.
Last fall, through a routine physical, I was diagnosed with high blood pressure and as they were monitoring my blood tests to adjust the medication appropriately, they found that my creatinine level was elevated. Tests revealed a blockage in addition to enlargening of the kidney. I had the blockage removed and the polyps turned out to be endometrial tissue. My doctors said that this was a very rare occurrence and went in laparascopically to discover that I had a very severe case of endo – implants were everywhere. I now knew that what I thought were just anxiety-related chest pains, are most likely endometrial implants.
I have just started Lupron and so far I haven’t had any bad side effects. The occasional hot flash comes at night time and the moodiness is definitely evident but not unmanageable. Prior to going on Lupron treatment I was terrified because I read about so many horror stories. I now know that every person will react to the treatment differently and worrying about what might happen is a waste of energy.
I hope that women who do NOT have the typical debilitating pain, heavy bleeding etc. most associated with endo, pay attention to any type of pain that they experience during their menstrual cycle. Endo is a funny thing and can present itself in different ways. Who would have thought that you could have endo in your chest? And for somebody who has a very severe case of it, I live a very active life with little pain. I feel blessed that the doctors discovered that I had the disease because had I gone on for much longer without any diagnosis, I might have lost a kidney.
May 12th, 2010 at 10:21 pm
So far I’ve had 3 laparoscopys for endo. My last was in may of 2009 to partially remove a cyst from my left ovary. They didn’t remove the whole thing because my doc was trying to save the ovary since my hubs and I have had a lot of difficulty trying to get pregnant. Recently I had severe pain in my back, abdomen, and groin as well as a lot of pressure and pain to urinate and blood in the urine. I thought that I had a UTI or kidney stone but that’s not the case. Doc thinks my endo is back and has developed on my bladder. He doesn’t want to do anymore surgeries so he is suggesting I start lupron. Right now I am taking percocet to help with the pain. Feeling like I don’t have much of a choice right now as I can hardly function with the pain I’m in. Just going to the bathroom is excruciating. I’m having an MRI tomorrow to rule out anything else that could be there.
Has anyone else dealt with Endo on the bladder before???
June 29th, 2010 at 1:59 am
I am 23 years old and was diagnosed with endo about 6 months ago. It all started one night while I was at work. I had just started my period that afternoon, and as the day progressed, the pain worsened. My periods prior to that day were-what I considered- fairly normal. They last about 4-5 days with moderate bleeding and mild cramps. No big deal. So when I started feeling this pain, I just knew something wasn’t right. When I arrived to work the pain was excrutiating to the point that it was making me nautious. My coworkers told me that I was ghostly pale and made me lay down. Luckily I work at a hospital, so the other nurses checked my vitals and wheeled me to the ER. I had a vaginal ultrasound done which revealed what the doctor thought was a cyst on my right ovary. It was 6cm in diameter. Long story short- I ended up having a diagnostic laparotomy about 3 months later which revealed significant endometriosis and adhesions. The mass seen on my ovary was an endometrioma. Since I’m young and have no children, my Dr. suggested lupron therapy. I just had my third injection today. I, like many of you, was scared to death by all of the things that I had read on the internet. But, with the help of my father who is a physician, I decided to try it, knowing that I could stop at any point if the side effects were too unbearable. So far, it really hasn’t been that bad. I’ve definitely had some hot flashes, but nothing compared to what I had feared. Of course I am no longer mestruating as well (which is kinda nice, ha). I have not noticed any mood swings or any other symtoms thus far. I still have 3 months left of therapy, so who knows what the future holds, but I encourage those of you who are trying to decide whether or not to take this drug to stop reading all of those horror stories and listen to your doctor. Talk it over with them. Voice your concerns. They are the educated ones and, in most cases, want what is best for us, the patient. I hope this information helps.
July 9th, 2010 at 8:06 pm
I am 22 years old and found out I had endo a year and a half ago due to severe pain during my periods. In December 2009 I had surgery and they got most of it but some of it they couldn’t get because it was on my colon. They told me the lupron shot was my only option. It took me awhile to decide because all the bad stuff that has been said about it. I decided to do it during the summer so it wouldn’t distract me in school when I start back in the fall. I am about to take my second shot at the end of July which will be my last shot. So far everything has been pretty good. The second week I had extreme achy muscles. A month in I was having mild warm flashes and a little tired here and there. Right now I am having bad hot flashes, bad acne, and have gained 7 pounds which feels like water weight. Honestly I could have easily handled this during school so far and think people should definitely give the shot a try.
September 15th, 2010 at 8:07 pm
Very good journey and experience!
October 19th, 2010 at 5:18 pm
I am 35 years old and have been on one form of birth control or another since I was sixteen. In Sept of 2009 I began to notice I had a persistent pain near my left ovary that got worse around my menstruation. About the same time, I also started noticing that sex was getting more and more painful and I was very limited to what positions I could do. I spoke to my general doctor about it at my physical and he recommended that I get an ultrasound. I did and it came back normal which baffled me. A few months later I brought up the issue again and he referred me to a urologist due to my history of UTIs. He thought I had interstitial cystitus- which I may. I saw the urologist for several months and underwent several bladder installations which seemed to help my sypmtoms of UTIs and bladder capacity; sex was still painful and the pain was still there. Eventually, my urologist suggested that I may have endometriosis, because my pain near my left ovary always intensified around my cycle. I immediately went to a gynocologist who during his initial examination performed an ultrasound again and interviewed me. He said he was 80% certain I had endo. What a relief! I suspected for some time that I had it and finally I had a doctor who reaffirmed my suspicions and understood my pain. I was immediately scheduled for a laporscopy due to my age and the fact that I still wanted to have children. The laporscopy revealed moderate endometriosis, with about a dozen adhesions but none that were very deep. I suspect my 19 years on birth control probably helped. I started the Lupron injections shortly after my laporscopy and I hate it. The first two months were tolerable. I had hot flashes, vaginal dryness and insomnia but I could tolerate the inconvenience. I’m now scheduled for my 5th shot later this week and am dreading it. It seems after the 3rd and 4th shot my side effects really kicked in. I’ve gained another 10 lbs (just as I had worked so hard to finally lose some weight), hot flashes that are more frequent and pronounced, joint pain, hair loss, memory loss, fatigue, insomnia, and a complete loss of my sex drive. I still have the pain in my left ovary but it isn’t as severe. I also don’t experience nearly as much pain during sex. I find that following the anti-inflammatory diet really helps as well as the occasional acupuncture therapy. I guess I had hoped that the trade off would’ve been more worth it. I feel almost worse taking the Lupron than I did suffering the endometriosis pain. My gyno keeps telling me to hang in there because I need to be agressive about this if I hope to have children at my age and with this condition. I just fear what I’ll feel like after the 5th and 6th injection since the 3rd and 4th got progressively worse.
October 19th, 2010 at 5:38 pm
Alright….so I wrote in a few months ago as I was starting my lupron therapy. (If you’re interested in my story just scroll up a bit)I just finished my 6th and final injection last month, and I have to say that I would do it again in a heart beat. The only bothersome symptom that I have experienced is hot flashes–and even those are tollerable (I just always have a little fan handy). As I stated earlier, I was so fearfull of this drug and had no idea what I was getting myself into when I started this whole process. Now that it’s all said and done, I decided that I really want to write on some sort of blog and share my positive experience because I read so many negative ones as I was doing my own research. I’m not calling everyone else a liar, rather not everyone is going to have the exact same drug reactions/side effects as others. So…as you…whoever you are…continue your lupron research, just know that there are people who have good things to say about this drug.
November 6th, 2010 at 12:05 am
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November 23rd, 2010 at 10:40 pm
I was on Lupron between Senior year of high school and freshman year of college. It was one of the harder to handle then having my scop done. The hormonal changes kicked in the night of prom. It was instant hot flashes and sever mood swings. I felt like I was unable to control myself and felt terrible for how I was treating those around me. I told my best friend at the dinner table that I was going to punch her in the face if she didnt shut up. I had no idea why I was acting the way I was. It turns out it was just all of the hormones. They then put me on HRT to balance myself out. I had memory loss, hot flashes, mood swings and extreme weight gain. Once I finished my 6 months all of these symptoms went away. I suggest trying continuous birth control before trying Lupron. I didnt not favor it.
December 15th, 2010 at 9:44 am
Hi,verybody,I will come again.
December 28th, 2010 at 3:45 pm
I am a father of an Endometriosis infected daughter and felt
hopeless as such until I came accross a medication thats
40+ years old. Wobenzym is a supplement use to boost the
IMMUNE SYSTEM, improve healing in sport injuries and help
cancer patients. My daughter took 6 pills per day (important
to be taken on an empty stomach) for six months,today she is pain free with only one small cyst. Wobenzym can be found over the counter in health suppletment shops.
February 13th, 2011 at 1:12 pm
I was recently dx with endometriosis after 8 years of horrible periods. It took an on-call Dr. at 7am on a Sunday morning to do surgery and find that my endometriosis had spread everywhere. He insisted that I start and stay on the Lupron shot for a year. Every piece of research I’ve read says that 6 months is the maximum amount of time. I’m glad to have read the posts where Lupron has worked well. But…I’m having the worst time of my life. My first shot made me volatile. I left my husband for the month to stay with my mom. That Lupron shot wore off too quickly and I ended up in the ER room with severe abdominal pain (and then hopitalized for 3 days for the pain and because I was incontinent). Now, I’ve just had my second shot, and I find that I cry at least twice a day (I’m on paxil 25CR, lorazepam TID). My bones and muscles hurt so badly that I crouch when I walk (I’m only 30, and I’m on Vicodin BID and before bed–doesn’t seem to help much). I have not slept an entire night through since my surgery in late November (I’m on Clonzaepam 2mg). I have thoughts that would not normally exist in me…I am (or was) a very happy, optimistic, out-going, social person. I find myself locked in my house more often, and denying social interactions pretty much all the time now. The most frustrating of all…when I tell my Dr., who is the one who did my surgery, he states that this is what my life will be like for the next year. He handed me off to a psychologist, and now when I have medical problems (as I do now with my hip after my surgery), I see his PA and never him. I guess I’m frustrated and found this a good place to vent. Thanks for the info I’ve learned from you all.
September 10th, 2011 at 6:40 pm
My wife and I just got married 2 months ago. Her and I have had
Incredible times together. To be honest, the best times of our lives!
After 2 weeks of being married she had surgery that consisted of ovarian drilling and
Was also diagnosed with endometreosis. Our sex life is literally nothing. There
Is honestly no affection at all, not even so much as holding hands.
She just took her first shot of Luperon, she now states she wants to be
Alone and I cant remember the last time she told me she loves me.
She says that it isnt me at all and I deserve better and also made the
Comment of how were not meant to be. She went to her moms this weekend and its the
First time we have been apart and it is a terrible feeling. I love her with all my heart.
I dont know what to do and it seems like from what I read, this shot causes extreme
mood swings and hormone changes. How long will this last? What can I say ir do to assure
my wife that its going to be fine? I will be destroyed if she acts on these hormonal
inbalances and files for divorce because of this medical issue.
Please help me
Ben
September 11th, 2011 at 4:43 am
Update to comment posted in October of 2010:
I never continued with Lupron after the fourth injection. I just couldn’t handle it. My doc advised against this if I wanted to have children but I didn’t care at that point. I waited several months for my cycle to return. Finally in December I was shocked to find out I was already pregnant! My son was born 4 weeks ago and is a very healthy child. My struggles with Lupron are a distant memory now. I haven’t noticed any endometrial pain return, pregnancy is also supposed to help. We’ll see what happens down the road but so far I guess it was all worth it!
October 26th, 2011 at 11:06 am
On Lupron Depot for Endo. I just had my second to last shot. It’s a journey and yes it is a huge change and temporary adjustment. I rroate to all of you, I feel sick and tired my body is exhausted and you are right I do not want leave my bed. The emotions come and go and worst of all I still have that time or menstrual period symptoms without the actual period. It’s difficult I am a newly wed and it’s our first year being married. Thank goodness my husband understands and ignores me half the time. He realizes it isn’t me, it is the shot. Let your wife cry and reassure them of themselves and your support. I hope and have faith this journey will pass and that their is a rainbow at the end of the tunnel. It isn’t easy but remember to take care of yourself, your beauty … If you look good, you feel good, you do good. If you work take a temporary FMLA it will save your job and save you from going to work when you have an awful night or morning. Good luck to all of us !
December 5th, 2011 at 1:57 am
My daughter has endometriosis. She was encouraged by her doctor to have two three month injections of Lupron. Five days after having the shot, she felt so crazy and out of control. She went to the hospital and they gave her Ambien to help her sleep and Ativan for the anxiety. More drugs to contract the effects of another drug. Its been a little over a month now since her first injection. There is no way that anyone in her family wants her to have the second injection. Her self-esteem has dropped considerably. She has gained over 20 lbs. She has had some memory loss. She is depressed and anxious all the time now. She hates to leave the house. She was a happy go lucky person, but now she has lost her joy. Doesn’t care about going anywhere or doing anything. She now has tingling in her toes and feet and leg cramps. She has always been a very active person and careful about maintaining her weight. Now it seems that no matter what she does, the weight keeps coming on. She is not a heavy eater and when she has a good cay, which is rare, she tries to be active around the house…still the weight increases. She seems angry all the time…little things upset her. She doesn’t seem to be able to control her anger. Before she hardly ever raised her voice..now she raises her voice most of the time. She is married and has three young children. We are all trying very hard to be patient with her. It’s not her…it’s the drug. Still, sometimes it isn’t easy. I really feel for her kids…..they are 10, 8 and 6. I have read many horror stories about Lupron. You believe that’s all they are until you experience it for yourself. I only hope the effects eventually wear off. I really feel so bad for all that she is going through. I feel bad for everyone of you who are suffering after receiving this injection. This drug should be banned.
December 5th, 2011 at 10:05 am
Since my posting on this blog around 3 months ago, my wife has had 5 of the lupron shots and now she is filing for divorce. She at first wanted to be alone knowing what this shot was going to do and she didnt want me to see it or deal with it. I never wanted to move out, I wanted to be there and support her through all of this. She was very clear that she wanted some space and I ended up packing a suitcase and moved in with a friend from work. It was only supposed to be a week and that had turned into 2.5 months. Living with another guy, suitcase as a dresser, living room as my bdrm, and the couch as my bed as its only a one bedroom apartment. On top of it all, we are still newlyweds, having only been married just a few months. My heart is shattered, I would do anything to have her back to the way it was. This Lupron is absolutely HORRIBLE!! It has made her someone completely opposite of who she is. I miss my wife and want her back but she has no desire as these shots make her feel completely numb with emotions. If I can give advuce to anyone who is considering these shots,, STAY AWAY!! These shots will cause HUGE problems. Do research as there are other medications that will work and talk to your Dr. For those going through this, either individually or as a couple, I wish you the very best!
December 5th, 2011 at 7:04 pm
Ben, I am so sorry that you have to go through this. My daughter sometimes doesn’t want anyone around either, but she is trying very hard to cope with this because really, she does want us around, but the drug makes her feel otherwise. I hope that your wife is able to get some help that will allow her to feel differently. I pray that she will come back to you. Life is so important, so precious and we need to treasure every moment that we have with our loved ones. Realize that when your wife acts the way she does, it is not her talking…it is the effects of the drug, Lupron. I heard that there are many lawsuits that have been filed against this drug company. Starting in January they are supposed to have warnings on the label. Sadly for those that have already taken Lupron, the warning comes too late. Doctors need to be more forth rite with the side effects and if they don’t know they should read up on it so that no one else needs to go through the horror that these poor women have already suffered. I am truly sad and sorry for you Ben.
December 6th, 2011 at 10:53 am
Thank you very much Jeannie! I keep praying for her health and also our marriage. Unfortunately for me, I think her mind is already made up. I will continue to lray for her no matter what, she did nothing wrong at all for me to have any ill feelings or resentment towards her. Its this dang drug that did this. She is the most perfect girl in all ways possible. My anger is with this drug and the lack of the communication from the Dr of just how powereful these side affects are and what they do.
I wish your daughter the very best and please keep strong for her and make sure she stays on the right path so that when this shot is finally out of her system, she doesnt have terrible regrets of mistakes Lupron can cause people to make.
I hope you and your family have happy holidays!
December 6th, 2011 at 5:12 pm
Thanks Ben. I wish you Happy Holidays too. I hope and pray that it will be possible for you to have a Merry Christmas. I am glad that you realize your wife’s problems stem from Lupron, and like you said, it is nothing that she did. You have every right, as do my daughter and I, and everyone else that has been effected by Lupron, to be angry. Doctors have been administering this shot for many years now. It is given for endometriosis, for prostate cancer, for women hanging fertility problems, and to prevent children from starting puberty too soon. The fact that this shot is now benign given to children is an outrage. It needs to be stopped and this drug needs to be banned. I hope and pray for my daughters sake, for your wife’s sake and everyone else that something is done soon so that no one else has to suffer the side effects of this terrible drug. My contented prayers for you and your wife. God bless you.
December 11th, 2011 at 12:40 am
I went through it and started lupron depot 5 months after my wedding. I just finished. It is very difficult, it was; I’m just now feeling like myself again. My husband has put up with me and I put up with myself. Yes you don’t want to be around anyone it’s a depression and your body is soooo out of it. It’s never you, you learn to know it’s the shot and it is. You will snap out of it after the treatment. You need to know from my experience it isn’t easy and you need to rely on your loved ones because you actually do need them. You need to vent, cry and tell you story. I relied on blogs to learn what I was experiencing but I never blogged until now that I’m through the treatment. I now know the importance of sharing this difficult experience, difficult and no one understands but family will be there to help you through the experience you never thought about. I’m 28 and I felt like a senior citizen how difficult as a newly wed. My husband ignored me half the time thank goodness and he supported me and asked me to continue the treatment and just get through it. I’m glad he did because I wanted to quit the horrific symptoms. I still don’t know if it helped but I know it’s over now and I’m back to feeling like me again, I got lost but I’m back! I encourage you to finish the process and give it a shot to help your body. I was desperate to cure myself from horrific menstrual pain before, during and after my period. Now it’s a waiting game to get my menstrual back after 6 months. It’s ok to express how you feel and for the love ones just hear us out and be patient, you do so much and it is appreciated weather we feel so sick or moody to acknowledge. You need to be strong and encourage your love one by going to every appointment with them, it helps us get through it. I have gotten through this hell if you have questions ask and I have the answer.
December 27th, 2011 at 6:21 am
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January 19th, 2012 at 9:29 am
I am well into my 2nd Lupron 3.75 injection, my 3rd scheduled in 2 weeks and I wanted to add to what I read. Before I went on this shot for one large fibroid causing infertility and severe menstration issues I researched Lupron to death, reading horrible experiences that hundreds of woman had. I went ahead with it because I know everyones body is different and my husband and I want to have a child. ITS NOT THAT BAD. I do have hot flashes, mostly at night which causes sleep issues, but other than that I feel great! No mood swings, no sexual issues, no weight gain….nothing. I write this to show people that not everyone has bad experiences on Lupron, EVERYONE is different. I am so thankful for it so far, having a good experience and hoping Im on my way to shrinking the fibroid and becoming a mom
Best of luck to whoever is out there researching it. Dont believe all that you read, you might have a good experience like I am!