My Experience With Lupron
Posted in My Thoughts on 11/06/2007 11:41 am by ChasLupron is a medication often given after birth control can not control your Endometriosis. This is a much harder method for you to endure. With that being said, it is not as hard as everyone may make you feel. This medication acts as an artificial menopause. It completely shuts down your hormone flow in order to stop the growth of the disease.
You will hear many horror stories about this medication and how hard it is to handle but as a person who knows, you can handle it. In truth, it does cause hot flashes, mood changes, and other menopausal type symptoms. It is not the easiest thing to take but it by far, is not the hardest either.
After your cycle of Lupron you should feel an extreme level of comfort that you did not feel prior to this step. In some cases, the disease can actaully go away for the most part forever but, in my case after about six months the disease began to grow back. Had I been ready at that point to have children, the opportunity could have very well been there but I was not ready. If you have child bearing issues and want children but the Endometriosis stops you, I would advise following the direction of your physcian and if this method is what he suggests, go for it. It very well may change the rest of your life.
December 3rd, 2007 at 3:41 pm
I haven’t tried Lupron. I don’t qualify for most ofthe hormonal options because of rare migraines I suffer from. But I use Mirena and am really mixed about it right now. Seemed like it worked for a while and now is not as well!
September 24th, 2008 at 11:27 am
My doctor would like for me to start on LUpron. I have also chronic migraines at least 2’s a month. I know it was from all the birth control pills..no one believed me. They did a head scan and found i have a tumor on a gland in my brain. They said they dont need to remover it. Once i stopped my pills the headaches finally went away..Now i’m in chronic pain though. it’s been 3 month now and i just had my period and the pains just wont stop. I refuse to go on Lupron. I heard it is the worst drug you can take from my cousin. My last choose is to have a baby, but i’m not sure i’m ready.
February 11th, 2009 at 3:19 pm
My daughter just turned 18 in January of this year and has been diagnosed with Endometriosis. Her Dr had to remove a tumur from her ovary, and that is when he saw the Endo. He has suggested to do Lupron but I am very scared. She is only 18 and getting ready for College. Is there anyone that has or knows someone that has gotten Endo when they were young? If so, what did they do?
February 11th, 2009 at 3:29 pm
I would suggest she takes birth control pills for 3 packs straight and stop..but if her period stops after time..stop taking them and start over again once it stops..If anyone tells you to still take them, it completely throws your body of and makes you feel like you are going crazy. They found mine at 23, i’m pretty sure I had it earlier. Although my first surgery was at 19, but they didnt find it but there werent looking either. I have also tried many birth controls, i realized low estrogen types help the headaches go away and dont make you feel so crazy or off balance. Eventually your body feels better after taking the pills but if you have chronic heads really really bad, like i did after Seasonal, dont take it anymore..I would not suggest taking that for over a year. I hope i was of some help?? if you have any more questions feel free to write me. I am now 30, and have been through a lot of trying to control it. I’m still going through a lot because of it though. Personally i wouldnt take LUpron though..i still havent. I refuse to take fertility drugs just because i took Lupron. I already have twins in my family I dont want triples..
February 22nd, 2009 at 2:28 pm
There is new minimally invasive surgery that is very helpful in treating the visible endometriosis. Lupron and Zoladex are medications that are very helpful in suppressing endometriosis that is not surgically visible.
I have been using ABC (Argon Beam Coagulator) during laparoscopy to vaporize visible endometriosis safely. In fact, I have been treating the peritoneal cudfesac and ovarian fossa with excellent results in suppressing pain and restoring fertility. I usually follow the surgery with 6 months of Zoladex.
Jose Bolanos MD OB/GYN & Infertility.
February 22nd, 2009 at 2:34 pm
I recommend treatment of endometriosis in college aged women when it is diagnosed. The treatment is safe and effective in suppressing the progression of the disease. The treatment will enable a better quality of life and the preservation of fertility. I can not stress it enough, endometriosis is progressive and stopping this progression early is important.
April 5th, 2009 at 8:11 pm
Hi, I had endometriosis! After living in two and half years of chronic fatigue, pain, and many tests. It took the doctors two and half years to determine that I had endometiosis, by this time it had developed into endometreial cancer. The week following the diagnosis I was in surgery which confirmed that it was endometriosis/endometrial cancer. I had alot of endometriosis and immediately started the pill which was unsuccessful. Then I started Lupron for six months. I felt good at first until I began to have horrific bone pain, and memory problems to the point I experienced extreme memory loss. After a few months the pain came back even worse than it was before. My last visit to the doctors I was told there was nothing more they could do for me and I couldn’t have any more Lupron or treatments of any kind for many years because I had the first stage of osteoporosis in my spine. I am a christian and I cried out to God to give me something to heal my body and He lead me to go to an Amish grocery store in Lancaster, Pa. I met a man there who was speaking with some Amish women and they were saying that we had heard you were sick, you look so good now. He finished talking with the women and turned to me and walked over to me and introduced himself. He began to share his testimony with me, that he had stomach cancer and the doctors sent him home and there was nothing more they could for him. After that his friend brought him Young Living essential oil of oregano. He began to ingest it and to rub it on his stomach and he is cancer free. I started to cry and I said our stories are similar but different cancers. I said, God has sent me here to get these oils. He told me were to get the oil of oregano. I started to take the oil of oregano internally in gel capsules and rub it on my stomach. Within four weeks I was pain free and I hadn’t been pain free for two and half years. I have remained on the oils to maintain my health. I am pain free and it has been seven years. I thank God for answering my prayers and bringing healing to me. I pray that all the women who are suffering with this illness will be able to recieve the information that I have just given and with that possibly be healed by our Lord Jesus Christ.
May 13th, 2009 at 1:14 am
my sister has been diagnosed with this disease. could you please send me/tell me about this oil of oregano and where to find it. all info you can give me would be wonderful.
thanks
May 14th, 2009 at 3:51 pm
Vickie,
I am sorry to hear your sister has endometreosis. I will be praying to God and asking Him if it is His will, He will bring His miraculous healing to her. You can get the oils from Young Living Essential Oils. There phone number is 1-800-371-2928, you can use my member number (402047) or you can sign up as a member. If I can help you in any other way please let me know. My cell phone number is 802-377-0342 feel free to call for prayer requests, or a good listening ear.
In Christ’s Love,
Kimberly Waldman
June 16th, 2009 at 5:11 pm
Hi! I’m 15…and my doctor just diagnosed me with endometriosis. Its a pretty scary thing to have to endure at such a young age. And one of the hardest parts is not having anybody to relate to. But I recently just found out that a young woman at my church has it and she has really been there for me. I recently started birth control with Yaz. The end of this month will be my first period with the pills and I have been experiencing some really painful symptoms that I didn’t feel before. For the first couple of days I had REALLY bad headaches. Has anyone else had these problems?
June 22nd, 2009 at 9:08 pm
I have had active endometriosis, adenomyosis ( in the Uterus) AND Ovarian cyst for over 10 years. I was diagnosed when I was in college and there isn’t a treatment I haven’t tried. I worked my way through the research archives (I have a background in medical research)to fully understand the disease. Information is your best weapon. Keep a detailed log of the pills you try especially the estrogen, if it fails make them change the estrogen or go off it completely. If pills do not work for you then move on to Norethin. If that fails, then you are finally at the Lupron faze. I took Lupron for 2 years and it gave me my life back. I know it is not the solution for everyone, but I found that having laproscopic surgery followed by 6 months of lupron was the most effective combination. I can’t stress enough that you need to take this seriously; keep a journal of your meds, symptoms and what makes them better/worse. This is your doctor’s map to your condition so make it as detailed as possible. If you are getting really bad headaches from a pill you need to change hormones Yaz has a different progesterin so try a more traditional pill. Ovcon worked the best of the birth control pills for, but each person’s body chemistry is different. Feel free to ask me any quesstions, it helps to share my knowledge.
June 24th, 2009 at 11:37 am
Hi, my name is Zena and I am currently doing a reseach paper on Endometriosis for my summer biology class. I’ve gathered alot of information but I thought it would be a good idea to get information from women as well as men who would like to share thier stories. If you would like to take part please feel free to email me at papillion4life@yahoo.com My paper is due in July so your in put is greatly apperciated.
June 25th, 2009 at 4:23 pm
chauncyB,
Please do some reseach into Lupron I have experienced very bad side effects as well as many other people. Before you go to your doctor and receive this treatment look into negative side effects for Lupron on the internet. May God give you wisdom along with your parents to help you make the right decision for you.
In Christ’s Love,
Kimberly Waldman
June 25th, 2009 at 10:34 pm
Kimberly,
I have done extensive research on all scientifically proven/studied medical treatments related to endometriosis. I would qualify Lupron as a “chemotherapy level” drug. By this I mean, when all else fails, the side efffects ( hot flashes, night sweat, ditzyness) I can handle. A good diet rich in calcium and free of estrogen plus vitamin d and a liquid calcium supplement can offset the potential bone loss. I believe that it is important that young women who are diagnosed seek medical attention first and only persue alternative therapies under the guidence of a trained professional. I am glad that you were able to find relief, but I think that scientific evidence is essential for quality treatment. Lupron has been scientifically proven to stop lesion growth, but like all medicines should be used only under the close supervision of a GYN prefereably an endo specialist.
July 24th, 2009 at 11:16 pm
I’ve had endo for years, had 9 surgeries, took Depo-Provera, and also Lupron, which all failed. I finally ended up getting a hysterectomy with both ovaries out at 40 years old. I have to take a very small amount of esorogen to be able to have sex once or twice a month so my husband won’t divorce me. Otherwise, it’s just too painful. It still hurts just the same, just not as unbable as before. Every time I even think about it I just grit my teeth. Does anyone else still have pain after surgury?? It just goes on and on.
July 26th, 2009 at 12:51 pm
patti mccomb,
There is hope for you! My name is Kimberly Waldman. I have posted my testimony on this site on April 5th 2009, please read it and if you have any questions I would be happy to speak with you by e-mail (beth-el_7@msn.com) or phone (802-388-0342). Please know that the essentials oils can give you relief from your pain, even after surgery, as they have done for me and many other people as well!
In Christ’s love,
Kimberly Waldman
July 31st, 2009 at 12:26 am
In May of 2008 I had a complete hystro leaving both ovaries. I was covered in endo. Prior to the surgery I was in severe pain espically in my lower back and during my monthly cycle. I also had this uncontrolable itching like I had a yeast infection but never did. After many test (pain sonos) and a new doctor I was pain free but not for long…In OCtober I started feeling tired again with extreme pain in my back (again) and pain during sex. I went back to the doctor..I had another painful sono which showed a softball size cyst on one ovary and neither of the ovaries would move which indicated the endo was back…During my second surgery in Nov the cyst was full of endo as well as other places on both ovaries…My doc (who I love) cleaned me up, again…We started me on birth control however, I have never been able to take bc pills…they cause migranes, they make me vomit and they make my gain weight…so as before I stopped..STUPID, I know…Now its back again…My lower back pain, my fatigue, my weight gain, getting sick when I eat, severe cramps like I am going to start my period…My doc wants to try Lupron…Im 39 and I have a very stressful and physically demanding job. I don’t know what to do….I just want the pain to stop…and right now not even the darvocet is working…any suggestions?? any comments?
August 6th, 2009 at 11:12 am
I began having serious cramps when I was 16-the cramps would be so bad that I would double over from the pain. Although I was able to go to school I didn’t make it to work very much or join any after school activities. My general physician at the time put me on birth control pills which only seemed to regulate when I would be feeling the pain which meant that I could brace myself for a week of torture. The pain lasted up until college at which time it was the same situation heavy bleeding and at least a week of not being able to move. When I started law school however, I saw a bump that began to form on my belly button-I shrugged it off as a black head but it turned out to be an endometrioma that had formed outside of my belly button-I had it removed and shortly there after noticed that my stomach began to swell -I immediately went to the doctor who told me that it would go away and it was just gas. The swelling never went away and I looked to be about 9 months pregnant–I changed doctors and was told that the reason my stomach was swelling was because it was full of fluid I was referred to an oncologist who tested me for several things-I was diagnosed with being malnurished, severely anemic. I had the fluid drained from my stomach which came to about 6 litters of a blood like substance–I found out that the fluid was from endo. Shortly after having the fluid drained I was given a number of test to determine how extensive the endo was–after a CT scan, the photos came back to hard to read- so my doctor said that she would need to open me up to get better look and any endo that she found she would get rid of- (I have photos of all of my procedures I can mail them if you would like) Nevertheless before she opened me up i had to undergo 3 iron transfusion because I was so malnurished surgery would have been impossible with out it. During surgery the doctors removed another 2 litters of fluid from me and found endo had completely covered my intestines, i had a fibroid removed, endo covered my liver,and my diaphragm. I have never been told that I have adhesions exactly but I have been told on numerous occasions that I have extensive scar tissue. After surgery I was placed on Lupron Depot for six months total and the endo seemed to have gone away-after my six months of Lupron I was then given the Nuva ring. More recently i went to the ongologist for a simple check up and discovered that their was fluid on my lungs- I had almost 2 liters of fluid which is believed to be endo removed from my right lung, followed by the removal of 2 cyst also believed to be endo from my right ovary I am now awaiting another treatment of Lupron. I am currently undergoing Lupron treatments and to anyone that has questions about it I prefer this over painful periods Lupron isn’t that bad if you have endured painful painful periods. (Please read my blog) Anyway, I have done extensive research on endo and have learned that there are very few cases of women having what is called pleural effusion endo or lung endo. The thing that is important to know about endo is that it can spread anywhere. Endo is simply tissue and wherever tissue can attach itself is where you will bleed-that includes your brain (rarely) and inner ear( also very very rare). Which begs the question how do you stop endo–well simple you have to stop menses which for now means you have a hysterectomy or you undergo some form of hormone control such as Lupron. TALK TO YOUR PHYSICIAN but read so that you understand the options available to you. If you have any questions please feel free to hit me up on my blog. I am 27 years old with no children and understand how hard it is to feel relief and to get some sort of comfort from endo.
August 6th, 2009 at 1:30 pm
Hello my wife has been diagnosed with Endometriosis and we have discussed the possibility of starting Lupron with her doctor. Her pain is excruciating and at 32 she is terrified of starting anything that sounds like menopause. I am just trying to educate myself and others about this little known condition and appreciate any feedback you can provide.
Thanks
August 6th, 2009 at 3:13 pm
I would highly suggest you consider having a family now. My cousin had such a bad case she wasnt even married they told her its now or never..they had her on so many different types of drugs like lupron..she hated it..she was only 26 and she had no chose but to have her baby now..she finally got pregnant with twins and then got married.after 6 years later she had to have a hysto. It may not be perfect circumstance but sometimes if you want what you want you have to sacrifice..I on the other had also have endometrosis was on and off many birth controls since i was 23 and they started to make me feel horrible..I was able to delay when i wanted to have a baby because i never wanted to have a doctor to tell me when i was ready..but i always had that in the back of my mind..After one miscarriage and I’m now 31, we are finally having our first baby..almost 4 months pregnant and i’m glad it was under my turns..I have never felt better in my life! Everything has just gone away!
October 23rd, 2009 at 2:16 am
I have had severe abdominal pain for about 2 years now and have been put on the ortho evera patch continuosly to not have a cycle. My ob recently recommended Lupron thinking I may have endo, but I am hesitant to start it without knowing if I actually have it. Is there something I should request to do first, possibly a laperscopy. Im only 22 so entering menopause right now is a scary thought. I do not have a very high pain tolerence, do you think lupron is a good choice?
October 23rd, 2009 at 10:47 am
I would personally not. I was taking oral birth control for many years once i would have symptoms my doctor would change it. If i felt unbalanced or my period would stop she would let me have my period once and the start the 3 packs again. That seemed to work for a very long time. I just dont see the point in taking lupron when we are known for being low in fertility as it is. Why take the chance to have more problems down the line. With all the years of taking birth control from the time i was 23, (9 years), I clearly didnt have a problem with infertility. I proved everyone wrong on our first try. i did have a miscarriage the first time, but the second time i also got pregnant the first time. I’m now 6 months pregnant with no problems. Everyone thinks my body is healing itself. My point is i would try everything before i do the rod thing in your arm and lupron.
November 11th, 2009 at 1:55 pm
Hi, my name is Denise and I have been suffering from Endo since the very first day I got my period. I remember having very very severe back pain and not knowing what it was until I went to the bathroom and realized I got my period for the first time (age 14). From then on out, every single month I had horrible back pain that would occasionaly (thru the week of having it) travel into my lower stomach. For about four years I dealt with it and would have to miss school if I was in such pain. At the age of 18 I went in for a laproscopy where they found the Endo and found that it was so severe they couldnt remove any of it. It was all over my other organs and since it was so thick they couldnt risk removing it. After that I tried Depo & Lupron (for about a year all together) which made me retain so much water I couldnt even wear my regular clothes to work. The hot flashes from the both of them were unbearable so I gave up on those shots. The next step was three month birth contral packs…I would never take the sugar pills though, I would just start my next pack–this would then mean that I would never end up getting my period which would result in NO PAIN!
I did that for about 7 years, Im now 25 and started spotting even when never taking a break between months (I think my body finally became immune to the pills) Even spotting just a little bit I would feel the endo pain immediatley!! Right now, my GYN said why dont I just maybe make it so that I get my period to see if in a few months the pain will subside. It has been 6 months and the pain is still there every time I get my period (and spotting). It is so depressing and frustrating all at the same time. The pain is rediculous and I dont know how to solve this problem. Has anyone else tried the birth control and never taking a break in between? Is it healthy to not get my period for years at a time? I just dont know what to do anymore? Any one else in my boat? I think I want to try and get another laproscopy and see if the endo has gone away and maybe I can now have it removed 
November 13th, 2009 at 5:25 pm
Denise:
If you read my April 09′ comment it will give you my testimony. A more in-depth testimony can be gotten by e-mailing me. And yes, there is a method to relieve all of this pain and suffering – just e-mail me.
I have also found another product that can relieve your pain. It is called Hemp Protein powder (Red Mill is the brand name) and it can be purchased at any health food store.
Again, I understand your pain and your plight and am sure i can help you with natural alternatives.
I will be praying for you,
Kimberly
November 13th, 2009 at 5:34 pm
Misty:
Please read my testimony and yes there is something that you can take naturally – just e-mail me and I will be more than happy to give it to you.
In the mean time try Hemp Protein powder from Red Mills which can be gotten at any health food store,
December 16th, 2009 at 2:12 pm
I am new here, just had a laperoscopy and a D & C done and they found endometriosis along with Adenomyosis. The Dr. wants to put me on Lupron and Zoladex together, then do an ablation on the uterus, and then in March another laperoscopy to get rid of more endometriosis that will def. be growing back he said. So, what does everyone think of this? I am 39, and right now have osteopena, which got worse in one years time. He also said he’ll put me on med. for osteoperosis. Is this all going to cure the endometriosis from coming back? I do know what the ablation does, and that’ll be good, I had severe thickening going on, twice in a matter of 2 years. He also said he can get rid of the uterus If I want, but it won’t correct the endo. and it’s a more aggressive way to treat what I have. What do you guys think?? Please please help. I need to decide.